Mitchell Lunn, MD, and Juno Obedin-Maliver, MD, MPH are researchers at the University of California, San Francisco. They are the principal investigators of The PRIDE Study, a large-scale, long-term health study of LGBTQ people, which aims to improve the health of LGBTQ people and their communities.
Lunn and Obedin-Maliver’s design for PRIDE is an ambitious, multi-year study. They faced three key challenges:
Challenge 1: Recruiting participants and collecting data. Participant engagement and long-term retention is critical to all longitudinal cohort studies.
Challenge 2: Scaling. The study needs to scale both horizontally in scope and vertically with more participants. Once the participant cohort is mature, the study design involves investigations into topics pertaining to specific medical and social issues.
Challenge 3: Maximizing funding. Using funding efficiently means reaching more participants and running the study for a longer period of time.
To solve all three problems at once, Lunn and Obedin-Maliver partnered with THREAD Research to create a ResearchKit-based iPhone application.
But this introduced a fourth problem:
How would they host the ResearchKit API backend and securely store the data?
The engineers at THREAD Research turned to Aptible. Built on Amazon Web Services, Aptible’s secure, compliant cloud platform allowed them to launch the study in less than 6 weeks, for 90% less than the cost of a traditional IT solution.
Using Aptible helped Drs. Lunn and Obedin-Maliver quickly gain IRB and data security approvals from UCSF. Aptible’s stability and scaling performance make it ideal for a project that may eventually grow to a decades-long, global study involving millions of participants.
UCSF, THREAD Research, and Aptible launched a world-class research study that will forever change how the LGBTQ community, health care professionals, policy-makers, and other researchers think.
- San Francisco, California